• South Bucks Branch

    • Find Out More - Useful Web Links

    Links to other sites

    Click on the links below to find out more

    The definitive resource for people with MND and those who care for them:
    MND Association National Office
     

    The following table provides a series of quick links to useful pages on the MND Association's web site:

    What is MND? An information resource for those wanting to find out more about MND
    Life with MND Advice and information for those living with MND
    Research Information about the current state of research into MND
    Conferences News of conferences and meetings to be held by the MND Association
    Publications Information about publications produced by the MND Association
    Online Resources A guide to the wide variety of printed and online material for people affected by MND
    Useful Organisations A list of organisations offering practical advice, information, equipment, services and support for people affected by MND


    Neighbouring Branches: the Introduction page describes the area covered by the South Bucks Branch, which is Buckinghamshire south of Milton Keynes together with parts of East Berkshire. If you wish to visit web sites of any of our immediately neighbouring Branches, the following links will take you to them: Milton Keynes, Oxfordshire, Reading & West Berkshire, Luton & South Bedfordshire

    Links to other web sites that may be of use:

    Carers UK provides information for carers in the UK including news, advice about employment and a forum to share your experiences with others.

    youreable.com provides advice and guidance on assistive technology and services for people with a disability; living with a disability; news with a disability bias and community forum.

    RADAR - the Royal Association for Disability and Rehabilitation is a national organisation run by and working for disabled people that fast tracks your opinions and concerns to policy makers in Westminster and Whitehall. They also provide a key ("The National Key Scheme") which will provide access to some 7000 toilets around the country which have facilities for disabled users; these are kept locked in order to minimise vandalism. A key can be obtained direct from RADAR, and may also be available from your local Council offices.

    Carer's Allowance is a DirectGov web site with advice, guidance and a facility to apply on-line for allowances for people with disabilities and those who care for them.

    Dial UK is a national organisation for a network of approximately 130 local disability information and advice services run by and for disabled people.

    Carers Bucks and Carers Berks are Network Members of the Princess Royal Trust for Carers, which is the largest provider of comprehensive carers support services in the UK. Carers Bucks is based in Aylesbury and can be contacted by phone on 01296 392711. Carers Berks is based in Reading and can be contacted by phone on 0118 950 3941.

    Help the Hospices provides information about hospices including locations, services offered, contact details and catchment areas.

    Healthtalkonline is  a relatively new website that lets you share other people's experiences of a wide range of conditions, including MND. It draws on a research study which involved interviews with people with MND and their carers. Visitors to the site will be able to see and listen to people talking about topics such as their immediate reactions to the diagnosis; how they manage daily life; the impact on their family; how they made decisions about equipment, home adaptations, or interventions such as feeding tubes and ventilation; and their philosophy and attitude to life. The information on Healthtalkonline is based on qualitative research into patient experiences, led by experts at the University of Oxford. These personal stories of health and illness will enable patients, families and healthcare professionals to benefit from the experiences of others.

    The Cinema Exhibitors' Association Card will entitle you to one free ticket for a person accompanying you to the cinema; to apply for the card you must be in receipt of the Disability Allowance or Attendance Allowance.

    The DirectGov Blue Badge Parking Map gives information about the locations of Blue Badge parking bays, wheelchair accessible toilets and filling stations offering ServiceCall facilities in a range of towns and cities.

    The Disabled Holiday Directory and Accessatlast.com are organisations that provide assistance in finding holiday accommodation for people with disabilities.

    ITCH (Information Technology Can Help) offers computer assistance to individuals with disabilities by providing volunteers who will visit disabled people in their homes and at other locations such as day centres.

    REMAP is a national charitable organisation engaged in the design and provision of specialised technical aids for disabled people.

    build-uk.net aims to build a network for those who are living with MND. Forums allow views to be given on a number of MND related issues. The site is not complete but it contains useful information.

    DisabledGear.com is a relatively new web site where you can find information about new products for disabled people, and can buy and sell second-hand equipment.

    If you have suggestions of other web sites that contain information of use to people with MND or their carers or families, please contact the Branch by email at: southbucks@mndassociation.org