Find Out More - Useful Web Links
Click on the links below to find out more
The definitive resource for people with MND and those who care for them:MND Association National Office
Information for carers in the UK including news, advice about employment and a forum to share your experiences with others:
Carers UK
A Government run web resource for carers including legal
information and details about support agencies in the UK:
Department
of Health run information site for carers
Advice and guidance on assistive technology and services for
people with a disability; living with a disability; news with a
disability bias and community forum:
Talk,
advice, products and information site for everyone affected by disability
RADAR is a national organisation run by and working for
disabled people that fast tracks your opinions and concerns to policy
makers in Westminster and Whitehall. They also provide a key ("The National Key
Scheme") which will provide access to some 7000 toilets around the country which
have facilities for disabled users; these are kept locked in order to minimise
vandalism. A key can be obtained direct from RADAR, and may also be available
from your local Council offices:
Royal
Association for Disability and Rehabilitation
A DirectGov web site with advice, guidance and a facility to
apply on-line for allowances for people with disabilities and those who
care for them:
Carers
Benefit On-line
The national organisation for a network of approximately 130
local disability information and advice services run by and for
disabled people:
Dial
UK - Disability Helpline
Carers Bucks and Carers Berks are Network Members of the
Princess Royal Trust for Carers, which is is the largest provider of
comprehensive carers support services in the UK. Carers Bucks is based in
Aylesbury and can be contacted by phone on 01296 392711:
Carers Bucks
Carers Berks
is based in Reading and can be contacted by phone on 0118 950 3941:
Carers
Berks
Information about hospices including locations, services offered, contact
details and catchment areas:
Hospice information
DIPEx: A relatively new website reflecting people's experiences of living with MND draws on a research study which involved interviews with 35 people with MND and 11 carers around the country can be found at www.dipex.org/motorneuronedisease Visitors to the site will be able to see and listen to people talking about topics such as their immediate reactions to the diagnosis; how they manage daily life; the impact on their family; how they made decisions about equipment, home adaptations, or interventions such as feeding tubes and ventilation; and their philosophy and attitude to life.
The Cinema Exhibitors' Association Card will entitle you to one free ticket for a person accompanying you to the cinema; to apply for the card you must be in receipt of the Disability Allowance or Attendance Allowance.
The DirectGov Blue Badge Parking Map gives information about the locations of Blue Badge parking bays, wheelchair accessible toilets and filling stations offering ServiceCall facilities in a range of towns and cities.